Tinley is 13 months and from birth she has had a heart murmur, which was known to us as an "innocent heart murmur". At her one year checkup, the doctors suggested an echocardiogram for further evaluation.
On March 7th we went in for her heart echo, it was there that we discovered that she has a rare congenital heart defect called Atrioventricular Septo Defect (AVSD). AVSD is a condition where the heart has not fully developed. The condition has left Tinley with three holes in her heart and a malformation of the two valves within the heart (Tricuspid & Mitral valves). These valves are normally separated by heart tissue which divides the right side and left side of the heart. In Tinley's case, the tissue that divides the heart (atrial & ventricular septum) has multiple holes in it. Because the heart did not fully develop, this caused the two heart valves to be connected as one, this is known as a common valve.
We were referred to the University of Michigan Motts children's hospital for additional follow-up and open heart surgery.
Within a week, we were scheduled for an EKG, a second heart echo, chest x-ray, blood work and a heart catherization.
All tests (except the heart catherization) were completed on March 16th, on March 17th we were suppose to return back to Michigan for her heart cat procedure. But to our surprise and to God’s glory, the heart catherization was cancelled later that evening! Tinley’s pulmonary heart pressure had decreased to a safe level within a week! Which now meant that we would be able to have the open heart surgery within 30 or so days.
While at Michigan we learned that the surgery would take 3-4 hours and that she would need to be in PICU the first week. The doctor said that we should plan on Tinley being in the hospital for a month with an additional 2 – 3 weeks at home after she's released.
We are anticipating living in Ann Arbor for the next month, your support will allow us to remain near Tinley and to see her through the surgery and post recovery care.
We plan on posting all updates here, please check in often to see how's she doing or signup below for alerts.
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As you may know, a week ago my parents went to Boston to evaluate their options for my dad. Definitive diagnosis is AL amyloidosis and multiple myeloma (cancer). He is scheduled to have a stem cell transplant later this month. The process itself it quite intense: a week of growth factor injections and stem cell collection via chest catheter, daily visits to check on vitals (each visit will be 8-9 hours per day), high-dose chemotherapy, and stem cell reinfusion. The entire process lasts about 8 weeks, and he will be "quarantined" from interacting with anyone except his doctors and one caregiver, which of course will be my mother, Elfreda Massie. He'll be in Boston through December and after he returns home, recovery can take several years.
How can you help? Prayer, prayer, and more prayer. In addition to your prayers for healing, wisdom, financial provision, peace, strength (and on and on…), you can also donate funding to help offsite the cost of their lodging, transportation, and the cost of treatment.
On April 1st around 1:30 AM a very tragic incident took place. Our dear friend, Destiny Hoyt, was involved in a roll over car accident. She was ejected from the vehicle and rushed to the hospital in critical condition. She is currently in a coma and has suffered very severe brain trauma.
As of right now she has no medical insurance, and hospital expenses are rising quickly. Doctors are at a loss as to how to further treat her injuries The Hoyt family has to make some crucial decisions quickly; and the purpose of this gofundme is to help cover medical expenses and possible future funeral arrangements.
Destiny has a heart of gold. She is the sunshine on a rainy day. She's hell on heels and whiskey in a teacup. Always the one to go out of her way to help a friend in need, and its now our time to return the favor.
The Hoyt family is asking for your prayers and are hoping for a miracle. Please help us ease the financial burden that they are facing at this time. Anything and everything helps.