Why does it always seem like the best people get hit the hardest? Becky and Jake Noel have been champions for their four children, especially their son Chase, who as a baby was diagnosed with a rare genetic disorder called Alpha-1 Antitrypsin Deficiency. Due to complications from the disease, Chase, now 14, is currently waiting for a liver transplant. He was recently featured as a Wish Kid for the Make A Wish Foundation. (Click on the video link in the gallery to watch a short 4 min. video clip about his wish)
About 18 months ago, Becky started experiencing extreme fatigue and was unable to keep up with her busy schedule as a mom of four kids. After an initial diagnosis of Hashimoto’s thyroiditis, her symptoms were all written off as thyroid related. Even though she worked out regularly she was experiencing extreme exercise intolerance and difficulty even walking up stairs. Her doctor failed to look for additional issues and told her she was probably just out of shape. Eventually, after getting to the point where she was barely able to stand, Becky was admitted to the hospital for 4 days where she received two blood transfusions and a battery of tests as doctors tried to find the cause of her anemia. Two days later her world fell apart when she was finally correctly diagnosed as having Multiple Myeloma, an incurable cancer of the plasma cells. Out of 3 stages of classification for Myeloma, Becky’s cancer is stage 3. At the time of her diagnosis, over 90% of her plasma cells were cancerous. She is currently undergoing treatment at Huntsman Cancer Institute in preparation for a stem cell transplant in hopes of putting her into remission. Her only concern is getting healthy enough to raise her children, and particularly to care for Chase when he has his liver transplant.
For one family to emotionally deal with two medical issues of this magnitude is understandably extremely stressful. Add to that pressure two sets of seemingly endless medical bills, and the stress is absolutely overwhelming. It's our turn to be champions for Becky, Chase and the rest of the Noel family. Your donations will be used to help pay for Becky and Chase's medical expenses, and allow the Noels to focus their energy on each other and on staying positive through this difficult journey.
Tinley is 13 months and from birth she has had a heart murmur, which was known to us as an "innocent heart murmur". At her one year checkup, the doctors suggested an echocardiogram for further evaluation.
On March 7th we went in for her heart echo, it was there that we discovered that she has a rare congenital heart defect called Atrioventricular Septo Defect (AVSD). AVSD is a condition where the heart has not fully developed. The condition has left Tinley with three holes in her heart and a malformation of the two valves within the heart (Tricuspid & Mitral valves). These valves are normally separated by heart tissue which divides the right side and left side of the heart. In Tinley's case, the tissue that divides the heart (atrial & ventricular septum) has multiple holes in it. Because the heart did not fully develop, this caused the two heart valves to be connected as one, this is known as a common valve.
We were referred to the University of Michigan Motts children's hospital for additional follow-up and open heart surgery.
Within a week, we were scheduled for an EKG, a second heart echo, chest x-ray, blood work and a heart catherization.
All tests (except the heart catherization) were completed on March 16th, on March 17th we were suppose to return back to Michigan for her heart cat procedure. But to our surprise and to God’s glory, the heart catherization was cancelled later that evening! Tinley’s pulmonary heart pressure had decreased to a safe level within a week! Which now meant that we would be able to have the open heart surgery within 30 or so days.
While at Michigan we learned that the surgery would take 3-4 hours and that she would need to be in PICU the first week. The doctor said that we should plan on Tinley being in the hospital for a month with an additional 2 – 3 weeks at home after she's released.
We are anticipating living in Ann Arbor for the next month, your support will allow us to remain near Tinley and to see her through the surgery and post recovery care.
We plan on posting all updates here, please check in often to see how's she doing or signup below for alerts.
The button below will allow you to share Tinley's story. Please share her story and pray for her....
Pedrito is 1 year old and on February 5, 2017 he entered the hospital with a virus. The virus affected his heart causing dilated cardiomyopathy (inflammation of the heart). Currently his heart is very weak and does not have enough strength to pump blood to his whole body and other organs are starting to deteriorate. Pedrito is plugged to a machine with artificial breathing waiting to be transfered.
Pedrito need to be transferred as soon as possible to Texas Children's Hospital for a heart transplant and treatment which has a cost of $2 Million.
WE NEED YOUR SUPPORT!!! $1.00 counts!
We will be eternally grateful!